Thursday, July 16, 2009

Living with CREST

Here's a good article I found that summarizes limited Scleroderma (CREST). It also briefly talks about some treatments options and things to do at home.

I don't talk about this much, but this is what I struggle with on a daily basis.

Today, I got some news that I may be showing signs of one of the worst complications - lung damage. I'm waiting for the dr's office to call me back with an appointment date for new lung tests. If the results of that test show further deterioration of my lung function, I will get to add a pulmonologist to the list of dr's/specialists I regularly see.

I'm trying to not get too down about this news, yet. Right now, until I get the new test, there's not really anything to get too worried about. Also, regardless of what that news may be, I'm going to try my best to rest in God. I know that He has my life in His hands. He has a plan for me. It's just very unnerving to get this news with an 8 1/2 month old at home. I guess it's just the pessimist coming out in me, but this afternoon I find myself continually jumping to the worst case scenario and thinking of how that would be on my family (child, husband, parents, etc).

I really just need to quit thinking of all the what if's right now. I'm going to try...

As I get more news on this, I'll keep you updated.

On a lighter note, Sweet T is getting her first tooth. It's through the gum, but not up enough that you can see it unless you get her laughing and look directly down at it.

1 comment:

Jenna said...

I am praying for you, I had no idea about your medical condition. So sorry we didn't get to get together before you left town. Dallas ran a fever for 5 days, screamed non stop and would not let me out of his sight, I think it was from teething, but I also think he had a stomach virus. Maybe when you are here again we can get together!